my thoughts, Uncategorized

Tired of this body


Ever since I was diagnosed with Addisons Disease my body has been screwed up. I have had so many diagnoses that have ended up being wrong that it’s hard to keep track.

Scoliosis

Lupus

Mixed connective tissue disease

Allergy to the sun

That’s just off the top.of my head there is so much more. Every year, when it changes to summer, my skin changes, one year when I itched, they swelled into huge welts. My Dr scratched me then went to let the student in and they had swelled in that time so much he speechless at first. I have fibromyalgia, on one side of my body?? I get cluster headaches but they are totally different from what they are supposed to be. They start some were on my head and move behind my eye, then they stay for hours. I will get just one once in awhile or one every day for a week. I noticed recently if I don’t get enough salt I feel tired and sluggish.

I dread the changing of the seasons. Pain has become part of my every day life. This year I am getting strange rashes, almost like I’m allergic to my own sweat. Working on the house, packing and moving can make u really sweaty. I haven’t changed anything but still have rashes all under my arms, on my chest, along my pants line on my waist. I’m so frustrated. Today I’m noticing an area on my head is itching.

My legs turn red w blue blotches and itch whenever I take a shower or do dishes. My hip swells and makes me look crooked.

I’m just tired of it. 

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House Remodeling, my thoughts, organized, Parents

So tired of being tired


Hi, I haven’t posted in a bit with all the choas going on at the moment but here’s an update. 

We are still in the apartment until school gets out June 16. I couldn’t see moving my son with only one month left to a new school. 

The house, we took out a wall, have refinished 4 floors so far, layed down 2 more, replaced some electrical wiring that was so old it was crumbly. Took out panelling all over the place, changed out lights and put up ceiling fans, cleaned up a garden that was started in front of the house, tore out wallpaper,  and a lot of clean up. During this whole process packing and sorting through a 3 bedroom apt with full basement and 8 years of junk. 

During this whole process my soon to be has worked his reg full time job of about 60 hours plus has a side job installing decks and some windows and has been the only muscle to move me. My son being 14 and lazy only helps when necessary and I’m not allowed to do much lifting, carrying, moving , climbing, etc. Etc. 

I feel so bad all the time because even if he let me I know I still don’t get as much done on a day as a normal healthy person does. My sleep is awful, I don’t get even a quarter of the REM sleep needed for anyone never mind me. I’m always fighting a cold or pain or something that were me down even more. It’s been about 20 years since I was diagnosed with Addisons and my health has just gone down hill from there but I don’t even remember normal anymore. I’m always tired and it’s so frustrating esp when I have so much to do. I take extra vit c and was just put on a vit d regimen but, I’m still tired. 

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